Mental Illness

New Studies Uncover Nuances in Disability and Mental Health Language Preferences

Recent investigations have delved into how individuals articulate and perceive their experiences with disabilities and mental health challenges. This week, *Mad in America* spotlights four distinct studies, each contributing to a deeper understanding of linguistic choices in these sensitive domains. A prominent theme across these studies is the interplay between a strong sense of disability identity and the inclination towards identity-first descriptors, such as 'disabled person,' contrasting with the person-first phrasing, like 'person with a disability.' These explorations collectively underscore the intricate and often personalized nature of language surrounding mental health and disability diagnoses, revealing that preferences are far from uniform and often depend on the specific condition and individual perspective.

The American Psychological Association (APA) has previously advocated for person-first language, suggesting it reduces stigma. However, some experts contend that this approach might inadvertently heighten stigmatization. While certain groups, like those with ADHD, may lean towards person-first terms, others, such as autistic individuals, frequently express a preference for identity-first language. This divergence highlights a critical discussion within the community, where the chosen words can significantly impact self-perception and public understanding.

A study published in *Rehabilitation Psychology* explored the connection between disability identity and language preferences, with Connie Janiszewski leading the research from Deakin University in Australia. The findings indicated a strong correlation: individuals with a more pronounced disability identity were more likely to favor identity-first language. Furthermore, the study noted that younger age, nonbinary gender identification, and visible disabilities were associated with both stronger disability identity and a greater preference for identity-first terms. This research, drawing from a self-report survey of 776 participants primarily from Australia, the US, and the UK, also found that neurodevelopmental, hearing, and pain disabilities often correlated with a stronger disability identity, whereas digestive and mental health disabilities showed a weaker link. Despite its valuable insights, the study acknowledged limitations, including its correlational design, unmeasured influencing factors like neurodiversity advocacy, potential self-report bias, and limited generalizability due to the predominantly Australian sample.

Another investigation, featured in *Schizophrenia*, examined the historical use of language in academic papers concerning schizophrenia. Maria Dino from the Universidade Federal de São Paulo in Brazil spearheaded this research, which revealed a notable decline over time in the use of identity-first language ('schizophrenic person') in favor of person-first ('person with schizophrenia') or neutral ('schizophrenia patients') terms. Analyzing 500 English-language articles published between 1951 and 2023, the study divided them into three timeframes. It found that while identity-first language was prevalent in earlier periods, it significantly decreased by the latest period (2014-2023), where neutral and person-first terms became dominant. The study acknowledged limitations, such as the underrepresentation of articles from low- and middle-income countries, the exclusive use of 'schizophrenia' as a search term, and the focus solely on English-language publications, which limits its scope regarding global linguistic practices.

In the *British Journal of Psychiatry*, Kate Cooper from University College London led research on ADHD language preferences among adults in the UK. This study found that most participants (77%) preferred person-first language ('I have ADHD'). However, higher rates of ADHD social identification were linked to a preference for identity-first language ('ADHDer') and increased psychotropic drug use. The study also observed a connection between learning about ADHD through social media and stronger ADHD social identification. While it suggested a possible association between ADHD social identification and higher self-reported anxiety and depression, these findings were not statistically significant. The research had limitations, including its inability to establish causation, the potential for self-report bias, a self-selected sample not fully representative of the UK ADHD population, and limited generalizability beyond the UK.

Finally, a study in *Frontiers in Psychology*, led by Patricia López-Resa from the University of Castilla-La Mancha in Spain, investigated language use in social media posts about autism. This research, analyzing 678 posts across five languages on the platform X (formerly Twitter), found that identity-first language was more common than person-first language. Furthermore, there was a significant increase in neuroaffirmative language since 2023, suggesting a shift away from a purely medical model in public discourse surrounding autism. The study indicated cultural and linguistic variations in framing autism, with neuroaffirmative framing being more common in English, French, and Norwegian posts, while medical framing was more prevalent in Spanish and Georgian. The authors attributed these trends to the growing influence of the neurodiversity movement. Limitations included the sole focus on X/Twitter, a potentially unrepresentative sample favoring vocal online advocates, and the inherent challenges in cross-linguistic mapping of complex concepts.

Collectively, these studies emphasize the dynamic and multifaceted nature of language when discussing disability and mental health. The shift from person-first to identity-first language in certain contexts, influenced by individual identity, social movements, and platforms, reflects a broader evolution in how society and individuals engage with these topics. This ongoing dialogue underscores the importance of respecting individual preferences and acknowledging the diverse ways people choose to define and express their experiences.

Neuro-Identitarianism: A Critical Examination of Modern Psychiatric Diagnosis and Societal Alienation

This analysis delves into the proliferating landscape of neurodevelopmental diagnoses, specifically autism spectrum disorder and attention-deficit/hyperactivity disorder, and critically examines their societal implications. It posits that while these diagnostic labels offer individuals a means to articulate their unique experiences and perceived differences, they concurrently risk individualizing systemic societal issues. By framing personal struggles through a neurobiological lens, the prevailing discourse may inadvertently overshadow the profound impact of societal alienation, a concept eloquently articulated by Marxist cultural critic Mark Fisher, who suggested that psychiatric models frequently medicalize understandable human responses to increasingly untenable social conditions.

The article further contends that the growing reliance on such diagnoses as a pathway to identity and support, termed 'neuro-identitarianism,' while seemingly empowering, could inadvertently fragment collective action. Instead of fostering a shared understanding of universal human experiences and advocating for broader structural reforms, this trend might lead to a competitive marketplace of identities. This individualistic approach risks perpetuating the very sense of estrangement and marginalization it aims to address, diverting attention from the urgent need for collective solutions to societal challenges and potentially hindering the pursuit of a common good.

The Proliferation of Neurodevelopmental Diagnoses and Its Ramifications

In contemporary society, there has been a notable surge in neurodevelopmental diagnoses, particularly autism and ADHD, transforming how we interpret human experiences, even beyond traditional markers of distress. This trend, often termed 'neurodiversity,' has seen a dramatic increase in referrals for assessments and prescriptions for related medications. Public figures increasingly share their diagnostic journeys, while social media platforms teem with content reinterpreting everyday anxieties and life crises through a neuro-lens, such as 'rejection sensitivity dysphoria' for social insecurity or 'autistic burnout' for mid-life struggles. Experts like Professor Uta Frith, a leading autism researcher, express concern that the expansive application of the autism diagnosis has diluted its original meaning, which traditionally emphasized significant social-communication difficulties and restricted behaviors. She highlights the heavy reliance on subjective reports in current assessments, often overlooking contradictory evidence and potentially leading to diagnoses for individuals whose social anxieties stem from broader psychological rather than inherent neurodevelopmental factors. Similarly, psychiatrist Dr. Sami Timimi points out the astonishing growth of ADHD diagnoses, from a rare condition to one affecting a substantial percentage of children in the UK and US, despite the absence of definitive biomarkers. He argues that diagnostic criteria, based on subjective questionnaires about behavioral frequency, lack developmental context, contributing to an ever-narrowing definition of normalcy. This expansion of diagnostic categories raises critical questions about the true nature of these conditions and the implications of medicalizing an ever-wider array of human experiences.

The burgeoning prevalence of neurodevelopmental labels has significant implications beyond individual identification; it shapes societal perceptions and resource allocation. The article highlights how this diagnostic surge contributes to a 'neuro-actualization' narrative, where pre-diagnosis is often characterized by a profound sense of inadequacy, isolation, and misunderstanding. The diagnosis then serves as an ontological event, transforming past fragmentation into a coherent identity and offering a rights-based framework for asserting individual needs within an unaccommodating world. However, this individualistic framework, while validating personal experience, simultaneously reinforces the idea that the source of distress lies solely within the individual's 'brain-wiring,' rather than in broader societal structures. This perspective often dismisses the notion that these 'neurodiverse' experiences might reflect universal human responses to collective alienation. The suggestion that such experiences could be more widespread is often met with resistance, perceived as invalidating individual neurodivergent identities. This focus on individual pathology, rather than collective malaise, effectively maintains the status quo of existing societal conditions that contribute to suffering. In the UK, for instance, the escalating costs of special educational needs provision and the doubling of disability benefits claims among young adults, with a significant portion attributed to autism and ADHD, underscore the material consequences. Diagnosis becomes a means to access state support, yet it fails to address fundamental issues like a dysfunctional labor market marked by precarious, low-wage employment. Thus, while offering a framework for individual understanding, the widespread adoption of neuro-identitarianism inadvertently diverts attention and energy from addressing systemic inequalities and fostering genuine collective solidarity necessary for meaningful societal change.

Alienation in Late Capitalism and the Promise of Neuro-Identitarianism

The rise of neuro-identitarianism can be profoundly understood through the lens of Marx's concept of alienation, particularly alienation from 'species-being' or Gattungswesen. Marx posited that humans are inherently social and relational, deriving self-understanding from shared life and recognizing themselves as part of a larger species. Alienation occurs when individuals are reduced to cogs in processes that serve external ends, rather than their own inherent human nature. In late capitalism, these processes of alienation have intensified to what sociologist Zygmunt Bauman termed 'liquid modernity,' characterized by pervasive social atomization and enforced individualization. This societal fragmentation leads to increased feelings of inadequacy, overwhelming stress, loneliness, and misunderstanding, as individuals become distanced from authentic social connection and increasingly perceive others through a judgmental lens. The attention economy further exacerbates this by exploiting consciousness itself, fostering distraction and fragmentation through technology that prioritizes screens over human interaction, thereby alienating individuals from their own inner lives. In essence, the very conditions of late capitalism create the fertile ground for the widespread distress that neuro-identitarianism then attempts to address. The diagnostic 'solution' simultaneously articulates and reifies this experience of alienation, by locating the problem within the individual's neurological makeup, rather than acknowledging the systemic pressures that contribute to a collective sense of unease.

Neuro-identitarianism, while seemingly a response to the profound alienation experienced in late capitalism, paradoxically entrenches it further. The pursuit of a diagnosis, driven by a fundamental human need for recognition and understanding, becomes amplified in fragmented, contactless societies where organic opportunities for authentic connection are dwindling. However, by creating distinct 'special interest groups' defined by neurological difference, and by framing their struggles in a competitive marketplace of identities, neuro-identitarianism inadvertently hinders the possibility of broader social solidarity. This approach, aligned with a 'hyper-liberal' cultural shift that elevates self-defined identity, reduces political discourse to the affirmation of individual selves, rather than the collective pursuit of structural change and the common good. John Gray argues that this cultural turn fragments public life into moralized contests among competing subjectivities, whether through nativist nationalism on the right or identity politics on the left. By denying the shared human experience of an often inhospitable world, neuro-identitarianism alienates individuals from their common humanity, replicating the very estrangement it seeks to resolve. The tragic irony lies in its well-intentioned efforts to validate individual subjectivity, which ultimately contribute to the erosion of collective awareness and action, leaving the root causes of alienation unaddressed and further entrenching the individualistic logic of modern society. This framework, while providing temporary solace, ultimately prevents a deeper, more unified response to systemic issues, leaving those with the most profound needs even more marginalized amidst the clamor of neuro-influencers and identity-based movements.

See More

Understanding Neuro-Identitarianism: Alienation in Modern Society

A systemic psychotherapist's viewpoint suggests that understanding human emotional challenges requires examining their social and interpersonal contexts. This perspective contrasts with a purely psychiatric approach, which the cultural critic Mark Fisher observed tends to medicalize understandable human reactions to difficult circumstances, attributing them to individual brain chemistry rather than external pressures.

In recent times, psychiatric diagnoses have become increasingly prevalent, extending beyond mental health issues to encompass a wide spectrum of human experiences. The neurodiversity movement has seen a significant surge in diagnoses, with autism assessments and ADHD medication prescriptions dramatically increasing. Celebrities openly discussing their diagnoses further amplify this trend, while social media reinterprets various aspects of human experience through a neurobiological lens, such as labeling social anxiety as 'rejection sensitivity dysphoria' or mid-life crises as 'autistic burnout'.

Prominent autism researcher Professor Uta Frith has voiced concerns that the concept of autism has broadened to such an extent that its original meaning, as a lifelong neurodevelopmental condition with specific social-communication difficulties, is being lost. She highlights the reliance on subjective reporting rather than objective biological markers for diagnosis, leading to many individuals receiving diagnoses despite lacking the pervasive social-communication challenges typically associated with the condition. Similarly, Dr. Sami Timimi, a critical psychiatrist, points out the exponential growth of ADHD diagnoses, despite the absence of clear genetic, neurochemical, or brain imaging biomarkers. He notes that diagnosis often relies on subjective questionnaires that do not adequately consider age-appropriate developmental norms, leading to a shrinking definition of what is considered typical behavior.

Beyond the medical community's growing concern about over-diagnosis, a more profound question arises: why are so many individuals increasingly identifying as neurodivergent and seeking such recognition? The answer likely extends beyond the influence of psychiatric discourse alone. While psychiatric frameworks provide a language for this phenomenon, its widespread appeal suggests deeper societal currents are at play. Timimi argues that by removing the contentious 'neuro' prefix, the demand for diagnosis primarily reflects a claim to distinctiveness, where individuals assert that their experiences and needs diverge from those deemed 'neurotypical'.

Observing neurodiversity blogs and social media reveals a consistent narrative: a pre-diagnosis self marked by profound uncertainty about one's needs, desires, and abilities, accompanied by persistent feelings of inadequacy, overwhelm, loneliness, and misunderstanding. In this context, diagnosis transcends a mere medical classification; it becomes an ontological event. The realization of being neurodiverse retrospectively provides coherence to a fragmented past, transforming confusion into a defined identity. This narrative often positions the world and its institutions as unaccommodating to the neurodivergent individual, with neuro-actualization offering a pathway to resistance through a rights-based framework for identifying and addressing their needs.

The descriptions of the pre-diagnosed self, characterized by fundamental uncertainty, bear a striking resemblance to Marx's concept of alienation, particularly alienation from 'species-being' or Gattungswesen. Humans are intrinsically social beings who develop self-understanding through collective life and perceive themselves as integral to the species. Marx argued that alienation from species-being occurs when individuals are reduced to mere instruments serving purposes external to their own.

In contemporary capitalism, processes of alienation have intensified to near-dystopian levels. Sociologist Zygmunt Bauman's concept of 'liquid modernity' describes a society marked by social fragmentation and enforced individualism. Isolated from one another, people increasingly perceive others as external and judgmental. Modern societies grapple with eroded community ties, declining civic engagement, and a technologically mediated existence that has supplanted embodied social interactions. Even consciousness itself has become a commodity, with the attention economy fostering distraction, compulsion, and fragmentation, drawing individuals towards screens rather than human connection, and alienating them from their inner lives. Consequently, contemporary capitalism inadvertently cultivates feelings of inadequacy, overwhelm, loneliness, and misunderstanding.

The diagnostic framework, while providing a means to articulate distress, simultaneously reinforces the experience of alienation. It tends to localize the problem within the individual's 'brain-wiring,' neglecting the possibility that these 'neurodiverse' experiences might reflect broader collective human experiences or systemic issues necessitating societal change. Suggesting that the experiences of those seeking diagnosis could be universal is often met with resistance, perceived as invalidating or diminishing neurodivergent experiences, which are asserted as unique and incomprehensible to neurotypical individuals.

This dynamic means that attempts to articulate the widespread unease of an individualized, disconnected, and disembodied existence ultimately reinforce individualism and estrangement, leaving the underlying conditions that generate suffering unaddressed. This paradox is inherent to liquid modernity, where distress is individualized, the self becomes the sole focus of explanation, and identity transitions from a given to a competitive pursuit. As the German sociologist Ulrich Beck noted, "how one lives becomes a biographical solution to systemic contradictions."

Diagnosis promises to validate an individual's experiences and needs within a competitive landscape of identities, leveraging the language of disability and civil rights to assert those needs. This rise of neuro-identitarianism is part of a broader 'hyper-liberal' cultural shift, where philosopher John Gray argues that self-defined identity has become so elevated that politics is reduced to the affirmation of the self. This can manifest as nativist ethnic nationalism on the right or symbolic politics of representation on the left, ultimately fragmenting public life into moralized conflicts among competing subjectivities, rather than pursuing structural change and the common good.

This fragmentation has tangible consequences. In the UK, special educational needs provision costs are soaring unsustainably, as parents are forced into adversarial battles with local authorities for their children's support. Meanwhile, schools are struggling with overcrowded classrooms, exhausted teachers, and diminished universal provisions due to years of austerity. Since 2012, the number of young adults claiming disability benefits has doubled, with a significant portion citing autism or ADHD. Diagnosis has become a temporary fix, a pathway to state benefits that fails to address a dysfunctional labor market that underinvests in young people and offers precarious, low-wage jobs often insufficient to cover living expenses.

Neuro-identitarianism, in this sense, reflects a broader societal trend. As essential services like housing, healthcare, education, and employment decline, resistance increasingly takes an individualized, shortsighted form, diverting collective pressure that could otherwise demand systemic reform. A profound irony is that those with the most severe needs, often functionally impaired and lacking the capacity to advocate for themselves, are increasingly marginalized amidst the clamor generated by neuro-influencers.

Neuro-identitarianism is an understandable response to the alienation prevalent in late capitalism. The pursuit of diagnosis reflects a fundamental human need for one's subjective experience to be acknowledged, a need amplified in atomized societies where genuine opportunities for connection and understanding are diminishing. However, the tragedy of neuro-identitarianism lies in its creation of special interest groups defined by difference, competing for recognition alongside other identity-based movements. This ultimately stifles the potential for broader solidarity. By denying shared human experiences within an often unwelcoming world, it further separates individuals from their common humanity, perpetuating the very alienation it aims to address.

See More